Chair: Mark Isherwood MS
Senedd Members:
Mabon ap Gwynfor MS
Rhun ap Iorwerth MS
Jane Dodds MS
Janet Finch-Saunders MS
Mike Hedges MS
Altaf Hussain MS
Darren Millar MS
Peredur Owen Griffiths MS
Secretary: Matthew Brindley, Hospice UK
External Members:
Maxine Johnson, Cruse Bereavement Care Cymru
Andy Goldsmith, Ty Gobaith/Hope House
Huw Owen, Ty Hafan & Ty Gobaith/Hope House
Tracy Jones, Ty Hafan
Iwan Hughes, Royal Pharmaceutical Society
Laura Hugman, Paul Sartori Hospice at Home
Liz Booyse, City Hospice
Katie Reade, Hospice UK
Glenn Page, Macmillan
Rachel Jones, Marie Curie
Jon Antoniazzi, Marie Curie
Jane McGrath, St Kentigern Hospice
Trystan Pritchard, St David's Hospice
Gethin Rhys, Cytûn - Churches Together in Wales
Emma Saysell, St David's Hospice Care
Grant Usmar, Hospice of the Valleys
Lesley Bethell, Compassionate Cymru
John Moss, Compassionate Cymru
Sian Guest, MNDA
Rachel Williams, Parkinson’s UK Cymru
Melanie Minty, Care Forum Wales
Heather Ferguson, Age Cymru
Ceridwen Hughes, Same but Different
Mary Mitchell, TIDE
· CPG continues to be an active and inclusive forum that brought together 80 people with lived experience, clinical and community expertise, and policy and research knowledge.
· The CPG has kept hospice and palliative and end of life care issues on the agenda writing regularly to and engaging Welsh Government, Health Boards, and various government bodies advocating for policy and funding solutions to support and develop a more sustainable sector and address inequalities in access to care.
· Joint in-person CPG with Funerals and Bereavement enabled wider sharing of experiences and good practice from across sectors.
Thursday 13th July 2023 (In-person and virtually)
Issues covered:
· Annual General Meeting
· The future of hospice care in Wales and challenges facing adult and children’s services
· Spotlight on Advance Care Planning
Attendance:
|
Mark Isherwood MS |
Will Davies (Rhys ab Owen MS) |
|
Fay Morley, Paul Sartori Hospice at Home |
Emma Saysell, St David’s Hospice Care |
|
Dominic Carter, Hospice UK |
Catrin Glyn, Carers Trust Wales |
|
Matthew Brindley, Hospice UK |
Tina Ahang, Together for Short Lives |
|
Tracy Jones, Tŷ Hafan |
Laura Hugman, Paul Sartori Hospice at Home |
|
Miranda McGinn, City Hospice |
Prof. Mark Taubert |
|
Ellen Greer, St Kentigern Hospice |
Mary Mitchell |
|
John Moss, Compassionate Cymru |
Gethin Rhys, Cytûn Churches Together in Wales |
|
Grant Usmar, Hospice of the Valleys |
Huw Owen, Ty Gobaith/Ty Hafan |
|
Liz Booyse, City Hospice |
|
|
Emily Hearne (David Rees MS) |
Rachel Jones, Marie Curie |
Thursday 18 October 2023 (In-person and virtually): Joint CPG with Funerals and Bereavement
Issues covered:
· The challenges facing Welsh hospices and the Welsh Government Phase 3 Palliative and End of Life Care Funding Review
· Introduction to the What Matters Most visual storytelling project
· Implications of the Fuller Inquiry into the care of deceased people
· Supporting and educating young people about bereavement
|
Mark Isherwood MS (chair) |
Glenn Page, Macmillan Cancer Support |
|
Deborah Smith, Wordsmith Communication (Secretary – CPG F&B) |
Gethin Rhys, Cytûn: Churches Together in Wales |
|
Matthew Brindley, Hospice UK (Secretary – CPG H&PC) |
Huw Owen, Ty Hafan/Ty Gobaith Children’s Hospice |
|
Kim Bird |
Jon Antoniazzi, Marie Curie |
|
Terry Tennens, SAIF |
Phillip Blatchly, Phillip Blatchly & Sons |
|
Kathy Riddick, Humanists UK |
John Adams, Perry & Phillips |
|
Andrew Judd, NAFD |
Anna-Louise Marsh, Covid-19 Bereaved Families for Justice Cymru |
|
Rachel Bradburne, NAFD |
John Moss, National Bereavement Framework Programme Manager |
|
Philip Blatchly, PR Blatchly |
Liz Booyse, Chair of Hospices Cymru |
|
Carol Humphreys, Care for the Family |
Ceridwen Hughes, Sam but Different |
|
Maxine Johnson, Cruse Bereavement Support Wales |
Mary Mitchell, Lived Experience |
|
Stephen Tom, Philip Tom & Sons, |
Katie Reade, Hospice UK |
|
Rhys Price, Gwilym Price |
Dr Sally Stringer, Same but Different |
|
Trystan Pritchard, St David's Hospice |
Laura Hugman, Paul Sartori Hospice at Home |
|
Emma Saysell, St David’s Hospice Care |
Grant Usmar, Hospice of the Valleys |
|
Catrin Glyn, Carers Trust Wales |
Tash Wynne, Marie Curie |
|
Rachel Bradburne, NAFD |
Glenn Page, Macmillan Cancer Support |
|
Tomos Evans, Marie Curie |
Gethin Rhys, Cytûn: Churches Together in Wales |
|
Huw Owen, Ty Hafan/Ty Gobaith Children’s Hospice |
Jon Antoniazzi, Marie Curie |
Thursday 29th February 2024 (In-person and virtually)
Issues covered:
· Spotlight on digital health and inclusion in palliative and end of life care
· Progress developing national Advance and Future Care resources
· Update on hospice funding and National Programme for Palliative and End of Life Care
Attendance:
|
Mark Isherwood MS (Chair) |
Matthew Brindley, Hospice UK (Secretary) |
|
Catrin Glyn, Carers Trust Wales |
Glenn Page, Macmillan Cancer Support |
|
Anna Tee, Macmillan Cancer Support |
Ben Dellow, Together for Short Lives |
|
Grant Usmar, Hospice of the Valleys |
Catherine Hodge, Hospice UK |
|
Hilary Watson, MS Society |
Prof. Mark Taubert |
|
Huw Owen, Ty Gobaith/Ty Hafan |
Liz Booyse, City Hospice |
|
John Moss, Compassionate Cymru |
Gethin Rhys, Cytûn Churches Together in Wales |
|
Laura Hugman, Paul Sartori Hospice at Home |
Lauren Emberton, Nightingale House Hospice |
|
Natasha Wynne, Marie Curie |
Rachel Jones, Marie Curie |
|
Melanie Minty, Care Forum Wales |
Lynda Kenway, NHS Executive |
Speaker/presentations from:
· Rachel Bradburne, Director of Policy, and Public Affairs, the National Association of Funeral Directors
· Anna-Louise Marsh-Rees, Group Lead for Covid-19 Bereaved Families for Justice Cymru
· John Adams, Perry & Phillips Funeral Directors
· Emma Kneebone, 2Wish
· Laura Hugman and Fay Morley, Paul Sartori Hospice at Home
· Prof. Mark Taubert, NHS Palliative Care Consultant and Chair of Advance & Future Care Planning Strategy Group NHS Wales
· John Moss, National Bereavement Framework Programme Manager
· Dr Idris Baker, National Clinical Lead for Palliative and End of Life Care
· Tracy Jones, Director of Family Wellbeing and Outreach Services, Ty Hafan Children’s Hospice
· Andy Goldsmith, CEO, Ty Gobaith and Hope House Children’s Hospice
· Ceridwen Hughes and Dr Sally Stringer, Same but Different
· Catherine Hodge, Research Manager at Hospice UK
· Trystan Pritchard, CEO, St David’s Hospice
· Liz Booyse, CEO, City Hospice and Chair, Hospices Cymru
· Rachel Jones, Associate Director Wales, Marie Curie
|
Group’s Expenses. |
No expenses incurred. |
£0.00 |
|
Costs of all goods. |
No goods purchased. |
£0.00 |
|
Benefits received by the group or individual Members from outside bodies. |
No benefits received. |
£0.00 |
|
Any secretariat or other support.
|
Policy and public affairs support paid for by Hospice UK |
£4501.00
|
|
Services provided to the Group such as hospitality.
|
||
|
Date |
Description and name of provider
|
Cost |
|
No Hospitality provided |
|
£0.00 |
|
No Hospitality provided |
|
£0.00 |
|
Total cost
|
£4501.00
|
|